I can't believe there are only 4 more treatments left!!!
This week has been hard! Jason's mouth and throat are very raw and he is only getting a swallow of water down. Wednesday the amafostine made him very ill, so ill that he could not have radiation that day. So now our last day will be the 29th. Tomorrow is chemo day so this weekend should prove to be a rough one! The worst part is that Sunday is Jason's birthday.
Because of how sick he got, Dr Chua said that he will not longer get the amafostine. I think that helped raise his spirits some and today he came out of radiation and did not get sick!!!
I am so excited to have treatments done and begin his process of getting back to normal!
Thanks again to everyone who has brought us meals, prayed for us and supported us through this rough time!
Feb 23, 2012
Feb 8, 2012
Eye on the prize....
We have now entered the not so fun phase of cancer. Not that anything about cancer is fun...but now...there is nothing happy about treatment other than the tumor is shrinking!
Friday was chemo and it really drained Jason. He has spent the days since throwing up ANYTHING in his stomach. He has lost MORE weight and his spirits are not as high. As much as I know it makes him slightly annoyed, with every negative he says I follow it with a positive!
As of Tuesday after radiation Jason has refused the pre-treatment meds. We now have an oral medication to take 3 times a day. With his weight loss and because he can not keep anything down he is now on 24hr fluids. We were given our back pack with our bag and pump today. Tomorrow I learn how to change it all for over the weekend.
14 treatments left!!!
Friday was chemo and it really drained Jason. He has spent the days since throwing up ANYTHING in his stomach. He has lost MORE weight and his spirits are not as high. As much as I know it makes him slightly annoyed, with every negative he says I follow it with a positive!
As of Tuesday after radiation Jason has refused the pre-treatment meds. We now have an oral medication to take 3 times a day. With his weight loss and because he can not keep anything down he is now on 24hr fluids. We were given our back pack with our bag and pump today. Tomorrow I learn how to change it all for over the weekend.
14 treatments left!!!
Feb 6, 2012
Half time!!!!
As of this past Friday we hit our "half time". We are now half way though Jason's treatments and have 1 chemo left!! His tumor is responding VERY well to the treatment and I have been taking photos of it to prove it. It's really amazing!
This last chemo was #2 for him and hit him a lot harder than the first. Saturday he had very hard hiccups all day. He would try home remedy's and they would stop for maybe 30 minutes and then come right back! The hiccups do not help the sick feeling! Trying to get Jason to use the feeding tube as often as he should is also fun.....He has 1 last chance then I will tell the Dr yes on the home care nurse to come set him up for evening feeding with a pump!
He got extra fluids on Sunday and more today due to how rotten he feels. Dr Grass gave him a script for his hiccups IF he needs it...he said they are not as bad. Stubborn man! I honestly think Dr Chua is linked to us mentally! We met with her on Friday and she made a comment about the pre meds before radiation. "You are responding very well to treatment so we can NOT stop the amifostine!" How did she know he was planning on telling her he wanted to stop it! Then today he was laying in his bed feeling like crud and I asked our radiation nurse Bonnie if she could grab Kim to talk to Jason about how he is feeling because he was in a panic that he could not lay still for the radiation. TA DA - Dr Chua walks through the door and right up to us! She told him what he didn't want to hear (That he HAS to do it) and also helped soothe him!
Trying to keep the kids happy, the house clean, Jason helped, dogs let out and feed, and food on the table is getting to be a bit stressful, but we are half way there! AND I have some amazing people volunteering to bring dinners! This means the world to me and I thank each and every one of you from the bottom of my heart!
This last chemo was #2 for him and hit him a lot harder than the first. Saturday he had very hard hiccups all day. He would try home remedy's and they would stop for maybe 30 minutes and then come right back! The hiccups do not help the sick feeling! Trying to get Jason to use the feeding tube as often as he should is also fun.....He has 1 last chance then I will tell the Dr yes on the home care nurse to come set him up for evening feeding with a pump!
He got extra fluids on Sunday and more today due to how rotten he feels. Dr Grass gave him a script for his hiccups IF he needs it...he said they are not as bad. Stubborn man! I honestly think Dr Chua is linked to us mentally! We met with her on Friday and she made a comment about the pre meds before radiation. "You are responding very well to treatment so we can NOT stop the amifostine!" How did she know he was planning on telling her he wanted to stop it! Then today he was laying in his bed feeling like crud and I asked our radiation nurse Bonnie if she could grab Kim to talk to Jason about how he is feeling because he was in a panic that he could not lay still for the radiation. TA DA - Dr Chua walks through the door and right up to us! She told him what he didn't want to hear (That he HAS to do it) and also helped soothe him!
Trying to keep the kids happy, the house clean, Jason helped, dogs let out and feed, and food on the table is getting to be a bit stressful, but we are half way there! AND I have some amazing people volunteering to bring dinners! This means the world to me and I thank each and every one of you from the bottom of my heart!
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