I'm done with this roller coaster! Can I get off now?
Jason has been having more and more pain in his neck around where the tumor is. He is taking more pain meds and nerve meds, with no relief. Last week Jason talked to Dr Chua about his pain and she sent him straight to Jewish hospital to have an ultrasound done on his neck. After the ultrasound he went back to Dr. Chua's office and found out it was clear. Next step was a CT scan. He left her office and the hospital called saying to head right over.
Dr Chua was trying to tie up all the lose ends before she headed out of town, so things were going fast. That night at 7pm I missed a call from Dr Chua herself!! That immediately sent an uneasy feeling through me! We tried to call back but got the answering service who were no help. Jason would call the next day.
So now we are at "the next day". CRAP! The tumor in his neck has gotten larger and now there are spots back in BOTH lungs! Why can't we catch a break?????
Telling the kids was not fun! My poor kids have been through so much. I hate to have to break their hearts. So, here we go again! Back on the 3 chemo treatments.
I'm at a loss.
