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Apr 12, 2012

CANCER HAS SUCCESSFULLY BEEN EVICTED!!

We went to our doctor appointment on Wednesday and were so nervous!!!!  We sat in the room and tapped our feet, talked about feeling sick - you name it!  Dr Gerson popped her head in and said she would be with us in a minute, she wanted to say hi to another patient real quick.  THAT sent our brains going a mile a minute!  She has bad news, that is why she went to another room first!  She wanted to think of a way to break it.  No, maybe it's good news and she was saying hi because she knew we were ok!  OR maybe she did not have the results at all!  Our minds were in overdrive.

Bonnie the amazing nurse we have had from day one popped her head in and said hi while she added papers to his file.  Bonnie sat there talking to us and said that Christina really worked hard on the pet scan.....uh.....why did she have to work so hard on it?  Bonnie said that the pet scan showed conflicting results.  One part said the tumor progressed and another said his node measured normal.  So Christina called the pet scan doctor and they worked through it.  Jason looked at her and said....."so is it good?"  "It's good news" Bonnie said!  My heart about hit the floor!  I think she saw the relief in our faces so she showed me the papers and said she was sorry she ruined the surprise.  I told her not to feel sorry, I was so thankful because I was tired of feeling like I was going to throw up one minute and poop my pants the next.  I know...details...but you know you have felt the same way sometime in your life!

Dr Gerson came in and was her normal perky self.  I love her!  She showed me pics of her new dog she just adopted and told us the story.  Then she said how amazing the news was!  On a normal scan they would still see a spot where the cancer was.  On Jason's scan they saw NOTHING!  The cancer is completely gone!!!  Jason looked at her and said..."So, I'm cancer free?"  :)  YES!

We started talking about having his tube and port removed and Dr Gerson had talked about calling Dr Chua to see what she thought.  Just as she and Jason agreed they would just wait and she went to grab a nurse- who was standing at the door?  Dr Chua!  She has done this to us 2 other times!  CRAZY!  Dr Chua said Jason can have the port and the tube removed as long as he can take his meds by mouth.  Last night he did just that!

When there was a small scare that the cancer was not gone Bonnie said there were nurses and staff that were really upset!  Jason has really made an impact on that office and everyone knows his story.  I can not say how much we appreciate each and every one of them.  Our nurse Megan who normally helped us out on the oncology side came over to see what the answer was too.  She said she could not wait any longer!  So after our appointment we had to do a walk through of the oncology clinic and hug all of our nurses.  Amazing women!!!

We made it to the car before I started to cry, wonderful tears of joy and relief!  Jason cried with me, we beat it!  We did JUST as we said we would, we evicted his cancer!  I love him with all my heart and I now see how truly strong he is!  I married Superman! (Or Diego as the nurses call him)

We go see the ENT Friday so he can do a follow up and then Dr Chua at the end of the month for her follow up.  Then we have nothing for 3 months!  Sweet nothing!  We have a trip planned for the beach in June and will have an amazing time.  We are a cancer free family!

THANK YOU to everyone who prayed for us and helped us through this rough time!  I know all of you helped keep me sane.  Now please forward your prayers to those of THANKS and some for our good friend Rachel who is having a rough time evicting her cancer.  She has surgery this weekend and is very stressed out.

One other cancer patient I would like to mention is little Annabel Kramer.  Not yet a year old and has been battling her own cancer along with Jason.  They went through a lot of the same things around the same times, but she still has more fighting to do!  I will attach a link to her progress page, please take a moment to look and maybe leave a few positive words for her family.  I have known her daddy Greg since I was 16.  I have no doubt that she will pull through this a winner, but the road is a rough one and she and her family could use the prayers!
https://www.facebook.com/groups/124260784357669/

"Always Blessings, Never losses!"

Apr 11, 2012

Results day......

This afternoon we get Jason's PET scan results.  We are both extremely nervous about this.  I will post as soon as I know something.  :(

Apr 9, 2012

Slow and steady wins the race

It has been a little while since my last post.  Nothing major has been going on, we are working on incorporating new (old) foods to Jason's diet.  Many are too spicy or dry his mouth out.  We are also working on weening him off of the feeding tube.  We have to be very careful with this, Dr Chua is watching his weight VERY closely and will not ok the tube removal unless he is gaining much of his weight back.

Wednesday we get the results from his most recent PET scan.  We are both nervous but ready to find out where we go from here. Please keep the prayers coming!!

Thanks!