Healing....slowly....but healing!

This week has been AMAZING!
Not only have we been free of treatments, but the weather has been great too!  Jason is doing great!  His throat is still very raw yet everyday he notices a change!  He has been spending more time downstairs with the family and yesterday we sat outside for quite a while!  Every day he tries to drink something....so far it leads to pain.  Food smells good to him again so now I feel horrible to eat around him, but take that as a good sign!

We had Amerimed set up to do over night feedings to help him get the needed calories in.  THAT WAS A JOKE!  No one in that company talked to each other, they actually asked me what the other person was doing or planning!  The nurse that came had no clue how to work the pump, she did not listen to us and had her own ideas!  We told her MANY times that his feeding tube is not new...we have been using it and if she looked at it she would have to know that!  She ignored us and started to tell us how to use it.  WE KNOW HOW TO USE IT!!!!!  The pieces that connect the pump to Jason's tube would not stay together so she told us to tape it.....when I told one of his oncology nurses that I have become friends with she went crazy!  "DO NOT TAPE IT! You should never tape something like that to someone who has a compromised immune system".  When we found out the formula that Amerimed had was not covered I said we would stick with our ensure.  They did not send the formula but NO ONE knew we chose to not use it.  The nurse was looking for it, the dietitian that called asked about it and the lady I spoke to yesterday telling her to come get the equipment asked about it!  Oh, and they only had us adding 1.5 cans a night and going up a small amount each night. (Because no one listened that we HAVE been using it)  After talking to our doctor they were also angry because they said they want him on 6 cans a day!  NOT the 3 they were starting him at.  This was the WORST experience and I would have a very hard time telling anyone else to use them!

We meet with Dr Gerson next week and they will run labs to check his levels.

We removed days from the meal page because I feel bad having people bring meals if I am home.  There are some people that have still expressed an interest in bringing something, I really do appreciate it!  If you are one of those people shoot me an email at jaime.smiddy@gmail.com and we will work it out.

We have a team walking in the RELAY FOR LIFE walk at Lakota West High School on May 18th.  Please check out our page and donate or join our team!  This will be our first year participating and we are VERY excited!!!  
http://main.acsevents.org/site/TR/RelayForLife/RFLFY12EC?pg=team&fr_id=40155&team_id=1139775